Fibromyalgia sufferers are only understood by those who have fibromyalgia

A friend told me that she heard a couple of comments from her coworker about another colleague who had fainted from the side effects of a new medication to treat her fibromyalgia.
While they were taking her on a stretcher, her words were: “No one can be so sick”.
In what seemed to be a validation for my situation, a supervisor began
his comments, informing me that “I knew a lot about my illness, because he and his wife had a close friend with her.”
The remaining comments turned into a stomach kick. , when he continued, “so that he can go ahead and rest. I have found two students to take their place during the summer. ”
Recently, a person we had working in our yard resurfaced the subject.
The contractor mentioned to my husband that his wife was with a disability. When my husband replied that he understood because I am too, the contractor hastened to say: “Yes, but his wife looks much better than mine.” My husband replied eloquently: “It seems he can easily fool you.”
When I was frustrated and disappointed by the possibility of rain during the baseball game (now postponed), I wrote on Facebook on the subject, I only managed to get a relative, who also has a chronic illness, to respond: “Don’t let your illness rule your lifetime”.
Not only was I stunned, but I also hoped that this relative, among all people, would understand me.
Unfortunately, I was wrong.
I know that those who do not have certain chronic and debilitating diseases cannot fully understand what it implies, but I am still surprised by the level of difficulty that people have to be understanding.
Of course, we also have difficulty understanding the variation of symptoms, and how our level of functioning can vary day by day (even hour by hour), but it can still be emotionally annoying to find those who seem unwilling to listen and to learn .
No, I cannot fully understand some of the daily sufferings and tribulations that a cancer survivor goes through, for example, but I will not minimize or ridicule another.
When I was a child, I remember visiting older relatives, in nursing homes and hospitals.
Nursing was the second most prominent profession among many of my mother’s relatives.
I even remember a teenager sitting in our hall reading (with much enthusiasm) our medical encyclopedias.
The most important thing for me was that my mother and grandmother explained to me the impact of the disease on the person, focusing on the person first.
Finding those who do not have an emotional feeling towards others leaves me dumbfounded.
Yes, I suppose I am quick to judge them, as they judge others.
I realize that not everyone reacts in the same way to diseases.
Some may even respond with fear and naivety.
Probably the most difficult factor for many of us is when we listen to the closest ones, making thoughtless comments.
Suddenly we have to defend ourselves. It is difficult to deal with this, especially if we are still struggling with internal conflicts over our health situation.
Why is it that many believe that self-control or willpower can heal us miraculously?
Why is this particular disease seen by some as self-invoked?
When a person lacks empathy and makes callous comments, it makes me wish they had to live my life for just one day.
They would kiss the floor, and be grateful to return to their normal body later.
I have no choice but to continue in it.

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